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European Reference Network for Rare Diseases

In March 2017, 24 European reference networks were approved, involving over 900 highly specialized healthcare facilities from more than 300 hospitals and 26 Member States. Healthcare providers in the Czech Republic have been very actively involved in this network, with 10 providers participating in 17 networks.

European reference networks are virtual networks that bring together healthcare providers across Europe to address complex or rare diseases that require highly specialized treatment and concentration of knowledge and resources. The networks are set up under Article 12 of EU Directive 2011/24 on the application of patients' rights in cross-border healthcare, which obliges EU Member States to support the European Reference Network, in particular in the field of rare diseases.

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